wow what a difference 24 hours can make!! although mack still has a long ways to go, she is beginning to swallow w/ less pain and appears a bit more interested in ice cream shakes! progress!
she slept all night which seemed like a very improved sign. she's a trooper when i wake her every four hours for meds. what an easy patient! she even wrote me a note yesterday thanking me for taking such good care of her - aaaawwwww!!
thanks again for all the prayers!! it just plain SUCKS to see your child in pain ... whether it's 'routine surgery' (ROUTINE TO WHO?) or not!!!
karey
Wednesday, July 30, 2008
mackiah's surgery is OVER!
she is now home and sleeping in my bed. i'm snuggled in next to her in my big comfy chair. she wakes every few minutes w/ a look of pain in her eyes and holds out her hand for me to hold or her arms for me to hug. it is SO HARD seeing her in pain. i do feel i see a look of betrayal in her eyes which grips me to the core. so far she's not talking ... just grunting. i just got the 6 meds laid out on a schedule. i've had practice doing that, haven't i?? w/ tears streaming down i read each label, each dose amount and times to be given and made a similar chart to the one i made for dad's meds. some meds are to be given once/day, some 2 times/day, some 3 times/day, some 4 times, and one as per needed. then some start decreasing as the days go on ... one needs refilled after 8 days ... one is to be weaned slowly as she starts to improve. if i didn't KNOW that i can handle this i'd feel really overwhelmed and alone in this ... so ... for the previous lessons learned, i am thankful for the confidence, albeit it very painful (emotionally).
coming out of the anesthesia was really, really hard to watch. kiah was disoriented and confused of course, but mostly shocked by the sudden pain in her throat, face, nose, neck. she'd open her eyes for brief moments as big as apples ... look at me as if to say 'MOMMY!! WHAT IS HAPPENING?? I AM HURTING SSSSSOOOOO BAD!!!! DO SOMETHING!!!!' they sent us home SO soon too. kiah had barely confirmed that she was even awake at that point!!?? i really liked our doc though; he was very gentle and kind hearted and was in no rush to answer our questions and explain things.
3 different nurses came into our room and said, 'kiah is the best patient ever! wish they were all like her :-) !!' i was so proud of her ... i mean really proud as she faced yet another really tough obstacle that required bravery and courage. we all KNOW she has it in her, don't we? she's proven that before ...when they first said, 'time to take a drink!' her eyes grew large as if to say, 'ARE YOU INSANE??!!' then they said again, 'i know you don't want to ... but you NEED to.' she then obediently reached out her hand to accept the glass and choke down her first sips w/ tear filled eyes.
daddy had a 'get well' balloon and a new webkins kitty waiting for his girl ... so sweet.
i cannot stop hearing bill cosby eeking out his hesitant, raspy 'ICE cream??????' chant upon waking from his BAM as well. i know you Torkelsons are smiling as you recall hearing Kurt pantomine this over and over. what a great memory. i'm so thankful i have such a family history of faith and love ... and laughter. just thinking of this blessing of such a supportive extended family on both sides immediately sends goosebumps running up and down my arms. thank you to each of you. i love you all SO much!!!
while terry was w/ us in the hospital there were problems w/ his out-of-town youth group that is here for a 'mission trip' to inner city memphis. he arranged for a volunteer to head them up this morning as they arrived to rennovate the apartments, but something happened and the out-of-towners had a PROBLEM w/ the inner city kids terry also had working w/ them side by side and apparently 'our boys' (neighborhood boys) got so mad they LEFT the work site offended. of course this is very upsetting. i'd like to give a swift kick in the butt to those 'church kids' who SIGNED UP to come here ... good grief ... what a wrong way to start off this week. terry has an incredibly packed schedule in the next two weeks so will be trying to juggle family and work life as usual. pls keep him in your prayers as well.
cayden is taking this all in stride but i can already tell the lack of attention on him will be a challenge! he is dieing to go swimming as well but i had to say no w/out being able to keep an eye on him. so, pls continue to keep us in your prayers as the next few days unfold.
we have been told the next 4 days should be pretty rough. need to go hug on my girl now!!
love to you all,
Karey and MacKiah!
she is now home and sleeping in my bed. i'm snuggled in next to her in my big comfy chair. she wakes every few minutes w/ a look of pain in her eyes and holds out her hand for me to hold or her arms for me to hug. it is SO HARD seeing her in pain. i do feel i see a look of betrayal in her eyes which grips me to the core. so far she's not talking ... just grunting. i just got the 6 meds laid out on a schedule. i've had practice doing that, haven't i?? w/ tears streaming down i read each label, each dose amount and times to be given and made a similar chart to the one i made for dad's meds. some meds are to be given once/day, some 2 times/day, some 3 times/day, some 4 times, and one as per needed. then some start decreasing as the days go on ... one needs refilled after 8 days ... one is to be weaned slowly as she starts to improve. if i didn't KNOW that i can handle this i'd feel really overwhelmed and alone in this ... so ... for the previous lessons learned, i am thankful for the confidence, albeit it very painful (emotionally).
coming out of the anesthesia was really, really hard to watch. kiah was disoriented and confused of course, but mostly shocked by the sudden pain in her throat, face, nose, neck. she'd open her eyes for brief moments as big as apples ... look at me as if to say 'MOMMY!! WHAT IS HAPPENING?? I AM HURTING SSSSSOOOOO BAD!!!! DO SOMETHING!!!!' they sent us home SO soon too. kiah had barely confirmed that she was even awake at that point!!?? i really liked our doc though; he was very gentle and kind hearted and was in no rush to answer our questions and explain things.3 different nurses came into our room and said, 'kiah is the best patient ever! wish they were all like her :-) !!' i was so proud of her ... i mean really proud as she faced yet another really tough obstacle that required bravery and courage. we all KNOW she has it in her, don't we? she's proven that before ...when they first said, 'time to take a drink!' her eyes grew large as if to say, 'ARE YOU INSANE??!!' then they said again, 'i know you don't want to ... but you NEED to.' she then obediently reached out her hand to accept the glass and choke down her first sips w/ tear filled eyes.
daddy had a 'get well' balloon and a new webkins kitty waiting for his girl ... so sweet.
i cannot stop hearing bill cosby eeking out his hesitant, raspy 'ICE cream??????' chant upon waking from his BAM as well. i know you Torkelsons are smiling as you recall hearing Kurt pantomine this over and over. what a great memory. i'm so thankful i have such a family history of faith and love ... and laughter. just thinking of this blessing of such a supportive extended family on both sides immediately sends goosebumps running up and down my arms. thank you to each of you. i love you all SO much!!!
while terry was w/ us in the hospital there were problems w/ his out-of-town youth group that is here for a 'mission trip' to inner city memphis. he arranged for a volunteer to head them up this morning as they arrived to rennovate the apartments, but something happened and the out-of-towners had a PROBLEM w/ the inner city kids terry also had working w/ them side by side and apparently 'our boys' (neighborhood boys) got so mad they LEFT the work site offended. of course this is very upsetting. i'd like to give a swift kick in the butt to those 'church kids' who SIGNED UP to come here ... good grief ... what a wrong way to start off this week. terry has an incredibly packed schedule in the next two weeks so will be trying to juggle family and work life as usual. pls keep him in your prayers as well.
cayden is taking this all in stride but i can already tell the lack of attention on him will be a challenge! he is dieing to go swimming as well but i had to say no w/out being able to keep an eye on him. so, pls continue to keep us in your prayers as the next few days unfold.
we have been told the next 4 days should be pretty rough. need to go hug on my girl now!!
love to you all,
Karey and MacKiah!
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